August 22, '09: International MS Society Listings
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
To see a current listing on international MS Society listings, click here
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
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Category: ADDITIONAL MS Resource Sites
Posted by: stuart
May 25, 2009
Six Questions with Stuart Schlossman of
"Stu's Views and MS News" (an MS advocate, blogger, source for MS information and MS peer).
Click this link, to read this MSF ( MS Foundation) interview
If not yet receiving our weekly MS Related e-newsletter, called "Stu's Views and MS Related News", then please click this link to complete the registration tab found on the MS Views and News Website.
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It will take less than 30 seconds and you will be rewarded with current MS information to your inbox each week.
March 31, '09: Bridging the Gap of Multiple Sclerosis resources
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
MS Views and News, Inc., is dedicated to the global collection and distribution of current information concerning Multiple Sclerosis. In collaboration with other organizations, MS Views and News uses state-of-the-art communication channels to provide information for those affected by, or interested, in MS.
Register at our website to receive our weekly published MS e-Newsletter, known as "Stu's Views and MS Related News".
While visiting the MS Views and News website, use the Resource section to view web-links of most globally known MS organizations. You will also find MS facts, available in many different languages
Take time to review our MS Blog.
Then, please share this valuable source for MS information with all whom you know, affected by Multiple Sclerosis
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Category: ADDITIONAL MS Resource Sites
Posted by: stuart
Denise I. Campagnolo MD, MS––Interim Multiple Sclerosis Program Director, Barrow Neurological Institute, Phoenix, Arizona
MS Attack
A multiple sclerosis (MS) attack, also called a relapse or exacerbation, is the sudden onset of new neurological symptoms or the reoccurrence of previous resolved symptoms. Further, true attacks typically last at minimum 24 hours, usually days to weeks, and generally are agreed to have to occur at least 30 days from a previous attack, so that they are separated in time.
The underlying cause of the MS relapse is inflammation in the nervous system. The inflammatory immune response strips the nerves of their insulation, or myelin, allowing the electrical signals to “short out” as they move about the nervous system. When inflammation causes the myelin to be damaged, the medical community refers to the process as demyelination. Demyelination occurs at focal points, termed “lesions” on MRI, resulting in many of the symptoms associated with MS.
Inflammation can vary in strength and location, which results in a wide-array of symptoms. Symptoms from an attack can vary from mild, such as a blurring of vision, to severe, such as complete loss of vision. They also vary in functional outcome by location: inflammation in the brain can cause problems with thinking whereas inflammation in the sensory tracts of the spinal cord may cause numbness. Typically, the formation of a new neurological symptom results from a new focal area of demyelination, or MS lesion. The deterioration of previous symptoms results from the reactivation, and subsequent worsening, of an old MS lesion. (http://www.nationalmssociety.org/about-multiple-clerosis/treatments/exacerbations/index.aspx).
=============================================MS Attack
A multiple sclerosis (MS) attack, also called a relapse or exacerbation, is the sudden onset of new neurological symptoms or the reoccurrence of previous resolved symptoms. Further, true attacks typically last at minimum 24 hours, usually days to weeks, and generally are agreed to have to occur at least 30 days from a previous attack, so that they are separated in time.
The underlying cause of the MS relapse is inflammation in the nervous system. The inflammatory immune response strips the nerves of their insulation, or myelin, allowing the electrical signals to “short out” as they move about the nervous system. When inflammation causes the myelin to be damaged, the medical community refers to the process as demyelination. Demyelination occurs at focal points, termed “lesions” on MRI, resulting in many of the symptoms associated with MS.
Inflammation can vary in strength and location, which results in a wide-array of symptoms. Symptoms from an attack can vary from mild, such as a blurring of vision, to severe, such as complete loss of vision. They also vary in functional outcome by location: inflammation in the brain can cause problems with thinking whereas inflammation in the sensory tracts of the spinal cord may cause numbness. Typically, the formation of a new neurological symptom results from a new focal area of demyelination, or MS lesion. The deterioration of previous symptoms results from the reactivation, and subsequent worsening, of an old MS lesion. (http://www.nationalmssociety.org/about-multiple-clerosis/treatments/exacerbations/index.aspx).
March 05, '09: Accelerated Cure Project for Multiple Sclerosis to begin collecting blood and data samples for MS Research
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
Accelerated Cure Project for Multiple Sclerosis is bringing the quest for a cure home to Boston
The nonprofit has collected blood samples and data from more than 1,400 MS patients and controls across the U.S. and will begin collecting samples in their back yard at Beth Israel Deaconess Medical Center.
(Waltham, MA March 6, 2009) -- Accelerated Cure Project for Multiple Sclerosis, a national nonprofit organization, today announced that they have finalized plans with Dr. Rip Kinkel and the Beth Israel Deaconess Medical Center in Boston (BIDMC) to begin the collection of blood and data samples to continue building the largest openly accessible, multi-disciplinary repository ever assembled for use in Multiple Sclerosis (MS) research.
"This is something that Accelerated Cure Project has been working on since we started the repository," says Carolyn Cronin, CEO of Accelerated Cure Project. "Having the ability to collect samples from a larger population through accessibility to our sites results in faster and more conclusive MS research. Our repository provides researchers with immediate access to a far greater number of samples than most scientists could collect themselves."
=============================================The nonprofit has collected blood samples and data from more than 1,400 MS patients and controls across the U.S. and will begin collecting samples in their back yard at Beth Israel Deaconess Medical Center.
(Waltham, MA March 6, 2009) -- Accelerated Cure Project for Multiple Sclerosis, a national nonprofit organization, today announced that they have finalized plans with Dr. Rip Kinkel and the Beth Israel Deaconess Medical Center in Boston (BIDMC) to begin the collection of blood and data samples to continue building the largest openly accessible, multi-disciplinary repository ever assembled for use in Multiple Sclerosis (MS) research.
"This is something that Accelerated Cure Project has been working on since we started the repository," says Carolyn Cronin, CEO of Accelerated Cure Project. "Having the ability to collect samples from a larger population through accessibility to our sites results in faster and more conclusive MS research. Our repository provides researchers with immediate access to a far greater number of samples than most scientists could collect themselves."
January 06, '09: MS Helping Hands-MSHH - Public Service Announcement
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
January 6, 2009
PSA - FOR IMMEDIATE RELEASE....................
It seems that the National Multiple Sclerosis Society (NMSS) doesn't want to recognize that there is another MS foundation in the State of Washington. We need this PSA to let people know that we do exists. MSHH has provided financial assistance to thousands of people with MS and others.
William L. "Bill" Brayer, President
MS Helping Hands-MSHH
www.mshelp.org
(425) 712-1804
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PSA - FOR IMMEDIATE RELEASE....................
It seems that the National Multiple Sclerosis Society (NMSS) doesn't want to recognize that there is another MS foundation in the State of Washington. We need this PSA to let people know that we do exists. MSHH has provided financial assistance to thousands of people with MS and others.
William L. "Bill" Brayer, President
MS Helping Hands-MSHH
www.mshelp.org
(425) 712-1804
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
For MS Patients, Caregivers and Healthcare Professionals,
If you want to keep up-to-date with MS Related News, I urge you to visit: http://www.msviewsandrelatednews.com ---
Once there, there is a link for you to register to receive our weekly MS e-Newsletter. Additionally, you will have access to our MS blog, Library of MS archives (for almost anything you want to know of this disease) and there are web resources, linking you to a multitude of globally known Multiple Sclerosis websites/organizations.
A one-stop source for information
If you have any questions, feel at ease to write to me at: stuartschlossman@bellsouth.net
Thank you
Best Regards,
Stuart Schlossman
Founder and editor of MS Views and Related News
and MS Views, Inc.
Fundraiser, Patient Advocate
=======================================
=============================================If you want to keep up-to-date with MS Related News, I urge you to visit: http://www.msviewsandrelatednews.com ---
Once there, there is a link for you to register to receive our weekly MS e-Newsletter. Additionally, you will have access to our MS blog, Library of MS archives (for almost anything you want to know of this disease) and there are web resources, linking you to a multitude of globally known Multiple Sclerosis websites/organizations.
A one-stop source for information
If you have any questions, feel at ease to write to me at: stuartschlossman@bellsouth.net
Thank you
Best Regards,
Stuart Schlossman
Founder and editor of MS Views and Related News
and MS Views, Inc.
Fundraiser, Patient Advocate
=======================================
December 10, '08: Multiple Sclerosis :How Can the "MS Hug" be Managed?
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
info obtained from ms.abouts.com
The "MS Hug" is an annoying and often painful MS symptom. If the symptom is severe enough to cause discomfort breathing, your neurologist may define this as a true relapse, run an MRI and give a course of Solu-Medrol. There are also several medications which can be prescribed that can provide varying degrees of relief (see below).
The following suggestions have been taken from different patient accounts of what helps them – different things may work for you at different times:
Deep Breathing Exercises: Breathe in as deeply as you can (really engaging the diaphragm) through your nose and blow out through your mouth.
Apply Pressure: Place the flat of your hand on the area and press fairly hard. I have even heard of people wrapping themselves in Ace bandages for the same effect.
=============================================The "MS Hug" is an annoying and often painful MS symptom. If the symptom is severe enough to cause discomfort breathing, your neurologist may define this as a true relapse, run an MRI and give a course of Solu-Medrol. There are also several medications which can be prescribed that can provide varying degrees of relief (see below).
The following suggestions have been taken from different patient accounts of what helps them – different things may work for you at different times:
Deep Breathing Exercises: Breathe in as deeply as you can (really engaging the diaphragm) through your nose and blow out through your mouth.
Apply Pressure: Place the flat of your hand on the area and press fairly hard. I have even heard of people wrapping themselves in Ace bandages for the same effect.
November 24, '08: You don't have to have Multiple Sclerosis to learn Holiday Tips..
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
Susan Dorne, OT assembled and wrote this piece: "Getting Ready for the Holidays", for her peers with Multiple Sclerosis.
Tis’ the season to be jolly….overwhelmed and exhausted! Yes, it’s that time again, already! I am surprised every year how quickly the time has gone by and what little time there is to get ready for the holidays. There is so much we need to think about: gifts, attending parties, entertaining, visitors, decorating, and so much more.
I thought a great place to start would be shopping for gifts. This is something I do all year long, let me explain. When I see something that makes me think of someone in particular, I buy it. Then I put it away and save it for their gift (ok, sometimes the timing may fall in time for the birthday but that’s ok, at least that’s taken care of). I make a list, especially if I’ve already bought something, so I can remember what I have and what I still need. CLICK HERE to continue reading this well prepared article..
When finished, you can be directed to our MS Bloggers Blog to leave comments
If you have yet to register to receive our weekly e-Newsletter, please consider registering by clicking this link <<
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Tis’ the season to be jolly….overwhelmed and exhausted! Yes, it’s that time again, already! I am surprised every year how quickly the time has gone by and what little time there is to get ready for the holidays. There is so much we need to think about: gifts, attending parties, entertaining, visitors, decorating, and so much more.
I thought a great place to start would be shopping for gifts. This is something I do all year long, let me explain. When I see something that makes me think of someone in particular, I buy it. Then I put it away and save it for their gift (ok, sometimes the timing may fall in time for the birthday but that’s ok, at least that’s taken care of). I make a list, especially if I’ve already bought something, so I can remember what I have and what I still need. CLICK HERE to continue reading this well prepared article..
When finished, you can be directed to our MS Bloggers Blog to leave comments
If you have yet to register to receive our weekly e-Newsletter, please consider registering by clicking this link <<
